What we did

We held workshops with women from across the country—different ages, ethnicities, and locations—to map the journey from diagnosis for women who were diagnosed after finding a lump or other symptom, through to treatment and life after breast cancer. Through these workshops, researchers developed rich personas to tell the stories behind the data, shining a light on what’s working and where problems occur – or compound – to impact survival from breast cancer. 

What we found

The findings showed both compassion and complexity in our health system. Many women described caring, dedicated clinicians, but also a fragmented, confusing pathway that left them feeling alone at key points.

“I felt like I was handed a diagnosis and then expected to figure out the rest on my own.”

“You don’t just need medical care, you need someone to help you understand what’s next.”

Key insights

The research showed information and emotional support often fall short, especially right after diagnosis or when treatment ends. 

Equity gaps persist, with Māori and rural women facing barriers to timely, effective and culturally safe treatment. 

Many felt they had to navigate the system themselves, juggling multiple appointments and follow-ups without clear coordination.

Why it matters

Projects like this are only possible because of donor generosity. By funding this research, supporters have helped give patients a platform to be heard—and turned their insights into action.  

This research, along with data from Te Rēhita Mate Ūtaetae – Breast Cancer Foundation National Register, helps to guide our work. The research we invest in, the solutions we champion and the programmes we create. It is a vital foundation to ensure our future programmes of work drive zero deaths from breast cancer. 

As one participant shared, “I just want my experience to help make it easier for the next person.” 

With your support, we can make sure it does.